Insufficient insurance coverage (e.g., high-deductibles, gaps in coverage), inadequate provider networks, or limitations on access to specialists

Coordination of care issues, including being prescribed medications that interact, difficulty getting refills, and difficulty scheduling appointments

Inadequate social and emotional support, including lack of mental health support to cope with a serious chronic illness

Lack of nutritional information and guidance on specific dietary concerns

Lack of information related to risk factors for children and other family members who may be at risk for IBD

Travel to appointments may be long, stressful, costly, and uncomfortable; issues managing symptoms or accessing bathrooms while traveling to appointments

Concerns about long-term medication effects for IBD

Lack of access to technology or internet with the increased use of telehealth methods

Lack of availability of health services and providers in the GI specialty care services

Lack of awareness that one has a chronic illness. Not every IBD patient has multiple hospitalizations, surgeries, or major flare episodes. Some may go a while before experiencing any of that and could have lack of self-awareness to seek medical attention on the issues they are facing